Category

Burns & Scars

Emergency Appeal
Survivor Andreas Appeals for Your Support

“I’m a survivor of burns as a result of an acid attack that happened in a case of mistaken identity. This was me and my son before the attack.”

 

After the attack, I was left with blindness, breathing problems and a face that would never look like the old me again. I’m a loyal supporter of The Katie Piper Foundation, and I’m writing to ask you to join me in that support, at a time of emergency.

PLEASE DONATE

 

I’ve just heard from Johanne, the Head of Patient Services at The Katie Piper Foundation. She told me that 5 times more survivors of burns are turning to the charity in need of help, than before the pandemic. The Foundation does not have enough funds to help these people in crisis. This precious charity has no Government funding. This lifeline’s existence relies on supporters like us. Survivors need your help today.

Like me, you’ll understand that Covid has made things unimaginably hard for people thrown suddenly into mental and physical health crisis. I asked Johanne, what is it like for survivors specifically, who’ve suffered their burns and trauma during the pandemic? She said, “Andreas, over half of those we are helping come to us having had thoughts of suicide. I’ve never seen anything like it in my 20 years of working with people with complex health needs.”

I was one of the first patients to get life-changing care and treatment at their Rehabilitation Centre, the only one of its kind in the UK. By working with the healthcare specialists and survivors there, those seconds of violence didn’t put an end to my faith in humanity, my independence, or my ability to be a husband and dad.

 

So I know how vital it is that no survivors of burns are turned away. I am personally devastated at the thought of any threat to the amazing impact achieved every day by Katie and her team. Please help victims of violence in crisis. And all survivors who turn to Katie’s charity. They’re trying to find a way through their first Christmas with new disabilities, lost identities and little hope. You can guide them through with a donation today.

PLEASE DONATE

I asked Johanne and Katie if I could get in touch with anyone who’d ever shown compassion towards this essential charity to ask them to join me to save survivor services. I really appreciate the chance to write to you.

It takes seconds for a life to be altered forever. It only takes seconds to donate. Please donate to the Foundation’s first Emergency Appeal in its history.

With warm wishes

Andreas

Andreas, Survivor of Burns and Supporter of The Katie Piper Foundation

PLEASE DONATE

 

 

KPF Weekend Event 2017

We held our 2017 Weekend Event at the end of September.  We had 60 guests this year – all adults affected by burn injuries and their family/friends/partners.  Activities included:

  • Cupcake decorating
  • A talk on confidence from Katie Piper
  • Mindful walks in nature
  • Personal training
  • Relaxing massage
  • Swimming
  • Camouflage and makeup consultations
  • Craft workshop
  • Vocational workshop

Our volunteers, burn survivors themselves, organised the weekend event and led the majority of the activities.

         

We had wonderful feedback from the event, including this testimonial:

I can’t thank the Foundation enough for our weekend event.  I’ve been beaming since I got in the car to leave. My own mother said I’ve come back a different person and am glowing.  I’ve learnt a lot about myself this weekend and it’s opened my eyes and corrected a lot of thoughts I had about myself.  I’ve met some amazing people who I am happy to say have now become my new friends and peers and also support. I feel like you have given me a purpose as I’ve been able to share tips with people on certain little day to day things.  Thank you so much for helping me find and be ME.

Online Survey to identify support needs of parents supporting a child with a burn injury

Online Survey to identify support needs of parents supporting a child with a burn injury

  • Are you a parent who is supporting a child who has had a burn injury?
  • Want to be entered into a prize draw to win one of two £50 Amazon vouchers?
  • Complete a survey which aims to identify parents support needs and well-being when supporting a child with a burn.

This survey is being developed by the Centre for Appearance Research, UWE and they are inviting parents to complete the survey to test the questions in order to refine and shorten it.  Once developed the survey will be used by the NHS and charities that provide support for burn patients and their families in order to ensure they get the best possible support.

To complete the survey click on this link: https://tinyurl.com/parentquest

McIndoe Burns Support Group – Next Meeting Fri 21st July

Friday 21 July 2017 11am-4pm
Queen Victoria Hospital East Grinstead

Activities will include:
• manicures
• reflexology
• reiki
• afternoon tea
• and possibly hand massage

The McIndoe Burns Support Group are holding a free wellbeing day for people aged 16 and over who have sustained a burn. It is an opportunity to take part in activities and meet other people with similar experiences.

The event is open to anyone over the age of 16 who has experienced a burn, or is a relative of someone who has experienced a burn of any type and size at any age and have been treated at any hospital.

You are welcome to bring a friend or family member with you.

For more information or to book your place please email Tania.Gibson@qvh.nhs.uk or call 01342 41440

Feedback from KPF Pop Up Event

KPF Pop Up Event:

The day began with an introduction from Raiche, who developed the KPF Pop Up Event

We then heard a motivational talk from Katie Piper, (focussing on confidence, personal development, wellbeing and overcoming barriers) followed by a group discussion.

After lunch we had a short motivational talk from a martial arts expert who had a burn injury as a child.

In the afternoon, attendees chose to take part in two out of these three 40 minute workshops:

  • Wellbeing (led by a psychotherapist)
  • Vocational (led by a careers advisor)
  • Goal setting (led by a coach)

Testimonials:

“Motivational talks were extremely helpful for my mindset and new ideas on outlook in life.”

“I liked meeting other people with burns, it’s strange to be in a room full of people and you’re not the only one with burns”.

Commenting on what they found helpful, one attendee said:  “The opportunity to listen to Katie and the guest speaker talk about their experiences, as well as meeting other burn survivors. The workshops enhanced my knowledge and attitude towards career management/potential and self-confidence/esteem.”

Another attendee shared: “I found the workshops particularly useful, the professionals were very informative but sensitive. In particular the careers advice has helped me to go on and find a job role in which I am happy, which is something I was really apprehensive about after leaving university. The workshops were filled with practical take-home advice that I can use moving forward.”

We look forward to supporting more adults with burns and trauma scars at our KPF Weekend Event in September 2017!

 

 

On-line Survey – Centre For Appearance Research

Researchers at the Centre for Appearance Research are hoping to recruit participants to an on-line survey focussing on the intimate lives of those living with a visible difference or an altered appearance. Taking part involves answering a series of survey style questions about yourself, your appearance, your thoughts and feelings and your intimate life. This is being done so that we can learn more about looking different and intimate relationships and to  help develop a measurement scale that researchers and clinicians may be able to use to identify those that find their intimate lives challenging because of how they look or how they feel about how they look. If you have a visible difference, are at least 18 years old, are based in the UK and would like to find out more and/or take part then please find more information at https://tinyurl.com/intimacyCAR On behalf of the Centre For Appearance Research, thank you.