HAVE YOU GOT SCARRING FOLLOWING A BURN INJURY?
ARE YOU WILLING TO HELP US EXPLORE WHY SOME PEOPLE
COPE BETTER THAN OTHERS?
We are looking for adults (18 + years) to take part in our research study, which aims to investigate why some people cope better than others, emotionally, following appearance-altering burn injuries.
It involves completing some questionnaires about yourself, how you manage difficult thoughts and feelings and how you feel about your injuries. To take part in this research project it does not matter whether you feel distressed or not about your scarring. We would like to gather a range of people’s experiences.
This study will take around 15 minutes in total.
You can find out more information and/or complete the questionnaires online via Survey Monkey through this link:
Alternatively, you can contact the Chief Investigator and ask for the questionnaires to be sent to you by post (with a pre-paid stamped addressed return envelope).
Your data will be anonymous and stored securely. The study has NHS ethical approval and is being conducted by psychologists at the Nottingham burns service.
For further information or queries please contact the research team:
Dr Laura Shepherd (Consultant Clinical Psychologist)
Tel. number: 0115 969 1169 ext. 57985
Mr Darren Reynolds (Assistant Clinical Psychologist)
Tel. number: 0115 969 1169 ext. 66165
We held our 2017 Weekend Event at the end of September. We had 60 guests this year – all adults affected by burn injuries and their family/friends/partners. Activities included:
- Cupcake decorating
- A talk on confidence from Katie Piper
- Preview of Trial By Fire – a documentary from Terry Dunnage – https://www.facebook.com/TerryDunnageFoundation/
- Mindful walks in nature
- Personal training
- Relaxing massage
- Camouflage and makeup consultations
- Craft workshop
- Vocational workshop
Our volunteers, burn survivors themselves, organised the weekend event and led the majority of the activities.
We had wonderful feedback from the event, including this testimonial:
I can’t thank the Foundation enough for our weekend event. I’ve been beaming since I got in the car to leave. My own mother said I’ve come back a different person and am glowing. I’ve learnt a lot about myself this weekend and it’s opened my eyes and corrected a lot of thoughts I had about myself. I’ve met some amazing people who I am happy to say have now become my new friends and peers and also support. I feel like you have given me a purpose as I’ve been able to share tips with people on certain little day to day things. Thank you so much for helping me find and be ME.
Online Survey to identify support needs of parents supporting a child with a burn injury
- Are you a parent who is supporting a child who has had a burn injury?
- Want to be entered into a prize draw to win one of two £50 Amazon vouchers?
- Complete a survey which aims to identify parents support needs and well-being when supporting a child with a burn.
This survey is being developed by the Centre for Appearance Research, UWE and they are inviting parents to complete the survey to test the questions in order to refine and shorten it. Once developed the survey will be used by the NHS and charities that provide support for burn patients and their families in order to ensure they get the best possible support.
To complete the survey click on this link: https://tinyurl.com/parentquest
Friday 21 July 2017 11am-4pm
Queen Victoria Hospital East Grinstead
Activities will include:
• afternoon tea
• and possibly hand massage
The McIndoe Burns Support Group are holding a free wellbeing day for people aged 16 and over who have sustained a burn. It is an opportunity to take part in activities and meet other people with similar experiences.
The event is open to anyone over the age of 16 who has experienced a burn, or is a relative of someone who has experienced a burn of any type and size at any age and have been treated at any hospital.
You are welcome to bring a friend or family member with you.
For more information or to book your place please email Tania.Gibson@qvh.nhs.uk or call 01342 41440
KPF Pop Up Event:
The day began with an introduction from Raiche, who developed the KPF Pop Up Event
We then heard a motivational talk from Katie Piper, (focussing on confidence, personal development, wellbeing and overcoming barriers) followed by a group discussion.
After lunch we had a short motivational talk from a martial arts expert who had a burn injury as a child.
In the afternoon, attendees chose to take part in two out of these three 40 minute workshops:
- Wellbeing (led by a psychotherapist)
- Vocational (led by a careers advisor)
- Goal setting (led by a coach)
“Motivational talks were extremely helpful for my mindset and new ideas on outlook in life.”
“I liked meeting other people with burns, it’s strange to be in a room full of people and you’re not the only one with burns”.
Commenting on what they found helpful, one attendee said: “The opportunity to listen to Katie and the guest speaker talk about their experiences, as well as meeting other burn survivors. The workshops enhanced my knowledge and attitude towards career management/potential and self-confidence/esteem.”
Another attendee shared: “I found the workshops particularly useful, the professionals were very informative but sensitive. In particular the careers advice has helped me to go on and find a job role in which I am happy, which is something I was really apprehensive about after leaving university. The workshops were filled with practical take-home advice that I can use moving forward.”
We look forward to supporting more adults with burns and trauma scars at our KPF Weekend Event in September 2017!
Researchers at the Centre for Appearance Research are hoping to recruit participants to an on-line survey focussing on the intimate lives of those living with a visible difference or an altered appearance. Taking part involves answering a series of survey style questions about yourself, your appearance, your thoughts and feelings and your intimate life. This is being done so that we can learn more about looking different and intimate relationships and to help develop a measurement scale that researchers and clinicians may be able to use to identify those that find their intimate lives challenging because of how they look or how they feel about how they look. If you have a visible difference, are at least 18 years old, are based in the UK and would like to find out more and/or take part then please find more information at https://tinyurl.com/intimacyCAR On behalf of the Centre For Appearance Research, thank you.
Sylvia, a member of the London Adult Burns Support Group http://www.chelwest.nhs.uk/services/surgery/burns-service/burns-support-groups has been working hard to create opportunities for people with appearance differences to go swimming in a relaxed and welcoming environment without fear of being judged by others. Sylvia’s hard work is paying off and she has now set a location for the first session on Saturday 4th March 2-4pm.
Depending on the level of interest and success it may be possible to expand to other locations and frequency. You can contact email@example.com directly for more information, updates, any questions and just to register your interest. Even if you are not a confident swimmer Sylvia is a trained instructor and may well be able to support you in building your confidence in water. (Please note that this is not a Katie Piper Foundation service).