The Foundation gave two presentations at the British Burn Association (BBA) Annual Meeting 2015 in Birmingham which took place from 20-22 May 2015. The three day event was attended by healthcare professionals from burn care services from across the UK as well as international delegates and speakers.
We were all delighted that two research projects undertaken by the Foundation were accepted by the BBA for presentation at the conference.
A burn-specific Patient Concern Inventory:
Katie Piper Foundation research analyst volunteer Beth Hughes, a burn survivor and beneficiary of the Foundation, was the lead researcher on a KPF project to establish a burns-specific ‘Patient Concern Inventory’ (PCI). A Patient Concern Inventory is a relatively new concept that facilitates patients to raise important issues with their healthcare team using a checklist of well-researched prompts. This engages the patient in self-assessment, and guides and targets a consultation, bringing to light issues that could be overlooked.
The original PCI was developed for head and neck cancer outpatient clinics where, prior to consultation, patients select from a list of 55 potential concerns covering physical and functional, social care and social, psychological, emotional and spiritual domains which acts as a guide for the consultation. The PCI has been shown to produce more focused, efficient and effective consultations and direct appropriate Multi Disciplinary Team referral and resources. Due to the numerous physical, psychological and other issues faced by burn patients, the introduction of a PCI-burns tool could be of great potential benefit.
With Phase 1 of our research complete, Beth’s presentation was an opportunity to recruit support from burn care teams for the next phases of the project (including trialling in a clinical setting). There was an extremely positive response to the concept and a large number of burn care services immediately expressed an interest in assisting with the final phases of the project. We believe this powerful but simple tool could become a standard part of burn care.
Evaluation of Hair Replacement Systems:
Our Charity Services Manager, Ezinna Rospigliosi, presented an evaluation of the benefits of hair replacement systems (HRS) compared to other non-surgical solutions to permanent scalp hair-loss due to burn injuries. This was a project initiated and led by a KPF beneficiary and volunteer.
Hair loss due to destroyed scalp hair follicles can have a devastating impact on a person’s psychosocial wellbeing and self-image and has been highlighted to the Foundation by patients as a significant area of concern. After investigation of non-surgical options, the Foundation developed criteria to fund custom-made HRS for burn survivors. These systems require the use of technologies including breathable membranes, specialist fitting and on-going maintenance.
As wigs are the most common non-surgical option available in the NHS, the Foundation’s evaluation focused on comparing HRS and wigs. In conclusion, HRSs appear to have a positive impact on wellbeing compared to other non-surgical hair loss solutions and our aim is that HRSs will become an option that is available via the NHS.
The Foundation was thrilled to be the Official Charity of The Ideal Home Show which took place at Olympia, London from 20th March – 6th April 2015. And we are pleased to announce that we will also be the benefitting Official Charity of both The Ideal Home Show at Christmas at EventCity, Manchester from 12th – 15th November and at Olympia, London from 25th – 29th November.
Watch this space for details of our special ticket offer which will be available shortly!
Katie was the show’s new ambassador for Fashion & Beauty and show organisers Media Ten kindly offered KPF the opportunity to be the Ideal Home Show’s official charity in 2015 – of course, we jumped at the chance, though organising our presence over the eighteen days of the show was quite a challenge! We were delighted to also offer a special 2 for 1 ticket deal for the Foundation for a limited period.
Many visitors to the show made donations to KPF when purchasing their tickets online and by giving money to the many Foundation volunteers that walked the show fundraising for us with our KPF collection tins – the show was a great success for the Foundation, raising £4,186!
We must say a special thank you to all of our KPF beneficiary volunteers who supported us throughout the eighteen day event and also a very big thank you to all of our other wonderful volunteers and those from Marks & Spencer who gave their time to fundraise for us at the show. It was a fantastic opportunity for us to promote the Foundation to the many thousands that attended.
As Fashion & Beauty Ambassador for the Show, Katie challenged the conventional catwalk by hosting three days of “Confidence – The Secret” fashion shows featuring alternative catwalk models from the Foundation (KPF beneficiaries Tulsi, Raiche and Lin were thrilled to take part) plus two models from Models of Diversity.
When Katie spoke to MailOnline about the initiative, she said: ‘I am working with The Ideal Home Show as a fashion and beauty ambassador to launch a bespoke show with alternative catwalk models chosen from my foundation, the Katie Piper Foundation, and Models of Diversity. It’s all incredibly exciting.’ Explaining the inspiration behind the show’s name, Katie said: ‘It’s called Confidence – The Secret because confidence is something you can use to express yourself and convey yourself and it’s something I’ve used through several periods of my life. It’s not about trying to look and be perfect, it’s about a positive mindset and being the best version of yourself that you can possibly be.’
On Saturday 14th June 2014 our second Scar Academy workshop took place at Queen Elizabeth Hospital Birmingham.
Hosted by Queen Elizabeth Hospital Birmingham’s Therapy Department, we ran our one day workshop on “Scar Assessment and Outcome Measures” in partnership with Oscare http://www.oscare.be/en/ and were thrilled that the day was fully subscribed and attended by healthcare professionals (physio’s, Occupational Therapists, nurses and doctors) representing all burn services in England, Wales and Ireland. Workshops were held on clinical, objective and patient reported / quality of life outcome measures. Effective outcome measures are crucial in determining what treatments for scars are most effective.
The day will be evaluated by the participants and we’ll share their feedback with you shortly.
A number of burn survivors kindly gave up their Saturday to act as models for each workshop and later that day KPF hosted a social event for them and others who joined us in the afternoon.
Our thanks to all who helped us on the day.
The Foundation’s Clinical Scar Specialist along with her colleague, lead physiotherapist in burns from Birmingham Queen Elizabeth Hospital, visited Lamalou, the specialist burn rehabilitation centre in France where Katie had treatment as featured in her documentary. This visit allowed them to gain a more clinical perspectives on the treatments and services offered at the rehab centre.
In partnership with Oscare and Queen Mary University, London the Katie Piper Foundation ran a ground breaking 2 day educational course on advanced scar management bringing new knowledge of scars and scar treatments, healthcare professionals representing all the burn services in the UK attended the course held at St Bartholomew Hospital, London.